About Me

My name is Sheila. I’m a wife to a loving and supportive husband, and we are parents to two awesome kiddos! I have a 5 year-old son named Nicholas, who is healthy, thriving and currently attending kindergarten. Just 12 months after Nick was born, I gave birth to my Gia, who is healthy, thriving and has Childhood Apraxia of Speech (CAS).

It was November of 2014 that I began the long journey of this mystery speech disorder, we call Apraxia. After Gia’s diagnosis, everything our family knew to be our life, changed. Call me crazy, but I love my new life! It’s filled with more purpose, more determination, more motivation, more optimism and more passion than I ever knew I could feel. My priorities have completely shifted, and I’m grateful for that. In fact, my priorities needed some shifting. I won’t ever tell you that I haven’t been angry, that I haven’t cried, or that I haven’t said, “why me”. I have done all of those things and probably will again, but Gia needs me now more than ever, and for that, I will fight through those feelings everyday.

I quickly realized how many people have been and will be, involved in Gia’s journey to recovery. I want to use my blog to document it all, and never forget those who not only helped Gia, but believed in her. I want to raise awareness to a devastating disorder, that very few have ever even heard of. I want to help others who are dealing with the special needs of their child, and I want them to help me. Most importantly, I want my daughter to read her story someday, and know how hard she fought to find her voice.

I love you Gia, this is for you baby girl!

View More: http://molliecostleyphotography.pass.us/tufano15

 

4 thoughts on “About Me

  1. My two-year old nephew Ethan was diagnosed with moderate to severe CAS in March 2015. He works with a SLP and an occupational therapist that come to his home. He will turn three in late summer and will begin school in the fall. The school district has had only one other child with CAS. How do we know if he is receiving the right therapy? What questions should we be asking? What progress should we look for? What techniques should we expect the SLP to use?

    We are attending a Kaufman seminar in October 2015 that will be given in Illinois our home state. We are excited but are interested in the techniques you are using with Gia. Any tips or suggestions would be appreciated. I love your website and cannot wait to share with Ethan’s mother Sara. Sara was recently asked what her goal was for Ethan and she said with tears in her eyes “I want him to say my name is Ethan.”

    Like

    • Hello Julia! Thank you for taking the time to read my blog! Reading a comment from a family with fairly new diagnosis always brings tears to my eyes. I know exactly what Sara is feeling right now, and it brings up a lot of raw emotion.

      You are asking all of the right questions, and I’d love to help in any way that I can. This is exactly why I do this! Feel free to contact me anytime, at sheilatufano@gmail.com. I’m happy to be an ongoing resource for you and Sara. If you don’t mind, I will email you shortly, to answer your questions and offer advice. If you’d like me to copy Sara to my email, just email me her contact info, or have her “follow” my blog, and I can get it that way as well.

      Make sure that you and Sara enter the Speech-EZ Giveaway, as this will be an excellent tool that WILL help Ethan, AND his SLP. You’ll hear from me soon, but until then, let Sara know that one of the best things I did for myself early on, was follow blogs and watch You Tube videos of children’s progress. These were the two things that finally allowed me to accept that there was a light at the end of the tunnel; and there is! Other moms are the BEST resources.

      Thank you for being so involved in getting your nephew help, he will thank you someday too :).

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  2. Hi Sheila! I’ve been reading your blog since I came across your beautiful video for Apraxia Awareness Day. I have a 3 and a half year old boy, diagnosed with CAS at the end of last year. We live in Chile, where I don’t know anyone else struggling with this same issue. Reading your blog has been like talking to a friend, so I just wanted to thank you!
    Can I contact you by email?

    Thanks!

    Like

    • Hello Tamara! Thank you so much for reading. Not having anyone around you experiencing something similar, has to be hard. It warms my heart that you feel like you’re talking to a friend!

      I would love for you to contact me anytime, with any questions. sheilatufano@gmail.com

      Thank you again, Tamara! Take care, and I look forward to hearing from you soon :).

      Like

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